I read most of the posts on Mayo Connects relating to Neuropathy as it’s relatively new for me and still being diagnosed. I’ve determined that everyone seems to be different in their symptoms. Causes of neuropathy also are widely varied. As are what seems to offer at least some relief for some and sadly no relief for others.

I have an autoimmune disease that caused Stage 3 liver cirrhosis. I had a transplant in August 2020. In October my stomach was numb and I began having tremors. My liver doctors said the numbness was normal and tremors caused by one of my anti rejection meds.

Tremors continued to get worse, numbness went down my right leg, hands became stiff and tingling, sharp pains in my right foot and lower leg. Terrible back pain. Liver doctors said see a neurologist.

Following the Covid vaccinations my symptoms increased. Numbness now in both feet and legs and all other symptoms increased. The neurologist gave me a bunch of labs, said I probably have another autoimmune disease, and referred me to a rheumatologist and a hematologist.

I have an impeccable diet, low carbs, no refined sugar, walk at least 2 miles a day and exercise. I do Gabapentin for sleep and pain. Can’t do cannabis anymore, unfortunately, as it conflicts with meds, as do many other drugs for neuropathy pain management. I started the ALA supplement a couple of months ago.

So, I’ll continue to read the posts…the mentors and many fellow “posters” have fabulous ideas and words of encouragement; I keep notes to ask my doctors, and, I do a lot of research. I have visits with all three doctors next week. I’m sure I’ll have more labs done and hope for an answer and maybe a solution.

I think my best advice is to keep observing and experimenting as you are, keep notes of what symptoms you have and when they occur, keep reading these posts and ask your doctors about the suggestions that may be right for you, research if you feel up for it, and most importantly, keep positive as much as possible.