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Recently Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jun 13, 2021 | Replies (24)

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Good afternoon @ess77. My freezing cold comes from my feet to about halfway up to my knee. It is as if my skin was a layer of melting ice. It usually makes an appearance as soon as I turn in for the night or lie down for a nap. There is no pain or discomfort. There is no itching or inflammation and I frequently have ice packs on my hands and wrists to fight the itch. So....the bottom line is, I have not done much but tolerate the melting ice on my legs while my nightly 2:1 tincture helps me nod off and my dreams take over.

I wonder, does it matter if you have numbness or not? I never have worn socks to bed. To be truthful, I have usually had a Cavalier puppy sleeping with me and keeping my feet warm. Or, like now, I have someone with a size 11 warm foot lying next to me. He says my feet are cool but not cold.

Regarding the cream or balm.....I use a 1:3 now for acute pain and a 3:1 for chronic pain.

May you be safe and protected from inner and outer harm.
Chris

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Replies to "Good afternoon @ess77. My freezing cold comes from my feet to about halfway up to my..."

Thanks, Chris. This is all helpful information. I have a lot of numbness in my feet, up to about 1/2 up my shins. The feet and toes all over stay cold often during the day, sometimes hot, don't know why the difference. Usually cold as ice at night and cold during the day I have very warm areas on my shins in front and lower areas. I think perhaps I have some vein issues from slight damage that causes that. Docs take note but move on.

I understand the blood isn't getting to these areas as it should and sometimes I can't tell if they're cold or not w/o touching w/my hands, which sometimes won't work because my hands/fingers are often a bit numb. Soooooo, aren't we having fun! I miss the hands and fingers since I used to play the piano and do miss that, and it affects so much we do in our everyday lives. But, I've learned to deal with all this pretty well, since I must! It does surprise me tho when my fingers don't feel things. Let me touch ice or a hot cup and see if they're numb. Nope! That's so strange, isn't it, that ice is so painful, anything cold hurts, yet I don't feel much.

I'm using the creams and lotions, like you and John. I suppose that's the best at this stange.....add some THC sprays to the coconut oil cream or a good lotion and I do ok. I do like the frankincense and myrrh cream, and the other with other such oils. They help.

OK. I sleep so well now with the combination of 1:1 or 2:1 and the reg meds, cymbalta and methocarbamol are wonderful for me. that's a good regimen for now and easily manipulated as needed. thanks for the input. You always help even when simply being supportive and understanding. BTW: is your size 11 for rent as a foot warmer?????? I move around too much, wouldn't work. Samantha even gets irritated at times when I move too much at night, not just legs but whole body w/discomfort. Can't stay in one position too long or get pretty uncomfortable in all the joints, arth. in vertebrae, etc. She gets up and goes to the end of the bed, giving me extra room. Or, gets on her tower and watches the night world go by. Lovely.
blessings and may your evening be lovely, pain free! elizabeth