@wsh66 Your final paragraph said that pain is back to where it is today. Are you saying that it's at the same level as when you got the pain pump?
I had a spinal cord stimulator implant in June of 2017, and after 4 years, my neuropathy pain is worse, and is moving up my legs. On the occasional good day, it's bearable, but most of the time, my pain level is between 7 and 9. At night, when I lie down, it is often the most painful part of the day, and I wonder how much longer I can stand it.
I spoke with a doctor at OHSU about a pain pump implant, but their protocol is to first have a DRG stimulator trial. I'm scheduled for that on July 20. If it helps, I won't want to have the implant until the fall because of the amount of yard and garden work I have to do. It normally freezes in September, so I can put away all of the hoses and soaker hoses in the barn for the winter. It would probably take that long to schedule the implant anyway.
I tapered off morphine sulfate contin a few weeks ago, in large part because of the hassle of getting a fresh prescription for it every month. And I'm tired of hearing all my doctors' lectures about how it doesn't reduce nerve pain. They're partly right, because I can't get a therapeutic dose. Between that and depression/anxiety disorder/PTSD, it's hard to get much enjoyment from the things I've always loved. My B.A. is in music, with piano as my major. I haven't played a note since the beginning of covid19.
It's now tomorrow, and I have to stop writing and go to sleep. One real blessing is that, as a rule, I sleep well with my Bipap mask on, so I get rest from the pain.
I appreciated what you had to say. I'll read it again after I've had my 9 hours.
Jim
I think you misunderstood what I said. I said I worked my way back to where I am today physically, which is greatly improved over where I was when I finished my cancer treatment and got my pain pump. As the levels of pain that we experience increase and decrease no method will ever be perfect. There will always be good days better days and bad days.