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Want to talk with others. Have you found relief from CRPS?
Chronic Pain | Last Active: Jul 10 6:30am | Replies (235)Comment receiving replies
Hi Rocket, welcome. I see you're looking to connect with other members who have CRPS. For that reason, I moved your message to this existing discussion group where you can connect with members like
@mam14 @dstewart318 @neverrest @nlong53 @londonwc1 @smallengineguy @csteel and more
Rocket, while we wait for others to join in, why not tell us a bit about yourself. What is the cause of your CRPS? What symptoms do you find the most challenging and what brings you relief?
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Over 20 years ago I had three ankle fusions. It seems that in fact “three times was a charm”. After the third fusion I developed symptoms for CRPS which were unfortunately misdiagnosed.
So I have had CRPS now for over 10 years. It took many doctors and years to define the issue.
There are days it’s debilitating and days not as worse but every single day there is pain. There is never a break from the pain.
My major symptoms are intense swelling of the foot and ankle, tremendous burning sensation that is constant, pain in ankle, foot, and most prominently in my toes. My foot pulsates and feels “on fire”.
In truth I get very minor relief with my meds. I try to stay as active as possible simply because I must.