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@katemn

Posted by @merilee, 33 minutes ago
I have a question if anyone can answer this for me..three years ago..diagnosed with MAC..Pulmonary Dr thought it was cancer when he looked at chest Xray...but did bronchial biopsy and continued to be negative. ...Dr put me on antibiotics for one year i took them...He did blood work and sputum tests off and on during that time..The last time ..I suggested a CT to see if any of the ground glass obicies that had been seen in the beginning had changed...CT result was Lung Cancer..and to this day..I think if i wouldn't have requested that scan..the cancer may have been worse.. was diagnosed stage 2A..surgery and chemo..I lost confidence in that Pulmonary Dr. And never went back....So always be involved in your heath care...Drs can be wrong..... sometimes...

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@merilee, I have moved you to the main MAC and Bronchiectasis Forum page because I think you will get more responses there .. hope you don't mind. I am so sorry this happened to you .. and so glad you were wise enough to demand that CT scan to receive proper care. How are you doing now? What a difficult journey for you!

We have other members who have mentioned "ground glass" in their posts .. I hope they jump in. If you read the past pages of this Forum you will see that we ALWAYS discuss being your own BEST advocate .. understanding your disease .. knowledge is power. Sounds like that is just what you did .. good for you! Hugs to you! Katherine

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Replies to "Posted by @merilee, 33 minutes ago I have a question if anyone can answer this for..."

Ground glass ! Yes, that's me too when I first was diagnosed with MAC a year and a half ago. Unlike you, I have had scheduled periodic CT scans because I am a high risk for lung cancer due to considerable family history and because of how my lung involvement is presenting. My next scan is Tuesday. I am glad you were proactive so you were diagnosed at stage 2A and not later. God bless you real good. Irene

@irene5, Irene keep us posted on that CT scan! Hugs! Katherine