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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@cosette1968

I totally support you, am sorry for what you are experiencing, and understand your feelings. I posted early on and since then have read post after post about those of us with similar experiences. We might differ in exact symptoms or history but we are the same - we had the vaccine and then we had neuropathy - either a flare or a new experience altogether. My symptoms subsided after two months, but then resurfaced and have continued on and off since then. I have received no acknowledgement that this is vaccine related and even though I begged - I couldn't get a round of steroids just to see if it would help. i want to believe that in the future there will be full acknowledgement of this adverse effect but more importantly there will be help for us that are affected. Surely, a protocol can be developed. If there was something more I could do to further this cause, other than report it, I would. In the meanwhile, we need to recognize and support each other in any way possible. If it wasn't for the posts here, I would have thought I was totally alone.

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Replies to "I totally support you, am sorry for what you are experiencing, and understand your feelings. I..."

Sorry you are a member of the Covid vaccine/neuropathy club, thank you for kind words and support. It is a shame that since we do not fit the current narrative we are silenced. However, more and more people including doctors are coming forward daily to report that either themselves or their patients have gotten neuropathy after getting the vaccines. Stay strong, keep the faith that truth will prevail.

I too posted early in this discussion. I have remained saddened and disheartened as I read the continuing posts going on four months now. And, still so little response from the medical world. As I’ve said numerous times, I am an advocate for the vaccine and it’s obvious impact in helping us conquer this devastating pandemic.

All I’m asking for are answers about why so many of us were impacted with new or increased neuropathy, research as to what might lead to a treatment for our symptoms, and a warning to others that neuropathy may be a side effect of the vaccine.

I developed peripheral nerve issues after my first Moderna shot. My doctor refuses to believe that the shot is to blame. He is testing me for auto immune issues. I was feeling all alone too! Not getting the second shot, at least for now.