COVID vaccines and neuropathy

Tested + for Covid in Dec. Had first vacation mid March, 2nd end of April. I started having peripheral neuropathy in both feet after Moderna vaccines. Pain and numbness in 3rd and 4th toes to start. Burning and swelling sensation (no actual swelling) that is worse at night. Gradually worsening and creeping upward towards my ankles now. Pain in balls of my feet constant now. Never had any of this before the vaccination. Primary care provider prescribed steroid for 7 days. Did help, but all came back as soon as course was finished. Has anyone else had neuropathy in feet after Covid or vacation, and had success in treating? I really hope I can find help.

Tested + for Covid in Dec. Had first vacation mid March, 2nd end of April. I started having peripheral neuropathy in both feet after Moderna vaccines. Pain and numbness in 3rd and 4th toes to start. Burning and swelling sensation (no actual swelling) that is worse at night. Gradually worsening and creeping upward towards my ankles now. Pain in balls of my feet constant now. Never had any of this before the vaccination. Primary care provider prescribed steroid for 7 days. Did help, but all came back as soon as course was finished. Has anyone else had neuropathy in feet after Covid or vacation, and had success in treating? I really hope I can find help.

@amyd67 i developed neuropathy right after my first Pfizer vaccine back in Dec. The symptoms in my feet sound a lot like yours. I’ve never had peripheral neuropathy until I received the vaccine. I did get the 2nd shot with no worsening. Overall, almost 6 months out now, I’m still having symptoms but they are possibly a little less. severe.

I too never had neuropathy until I took the first Moderna vaccine over 13 weeks ago. Within a week I was suffering from terrible pain and numbness and tingling in all of my extremities. I landed up in the Emergency Room, and have been to my pcp, neurologist, cardiologist. I was diagnosed with vaccine induced peripheral neuropathy, as well as tinnitus, and bulging veins in my arms and legs. I went from a happy and healthy individual before I took the vaccine to someone who now has constant pain in my extremities with a Constant ringing in my ears and veins that I never saw before and look twice the size of the ones I had before. It’s been a nightmare that I have not been given any clue as to when it will end.

I developed small Fiber Neuropathy three months after my second Moderna shot, with cold feet and legs, numbing, etc. I am wondering if that is the cause as a 75 year old I never had anything like this.

Yes we know different bodies react differently. My experience was a five fold worsening of my neuropathy within hours of getting jab one. There are just no other variables to blame. I’m not trying to convince anyone that the vaccine is to be feared. It’s far too personal of a decision. I’m simply sharing my own experience, which it seems was quite similar to many others out there. I’m glad to hear your husbands was different.

I too never had neuropathy until I took the first Moderna vaccine over 13 weeks ago. Within a week I was suffering from terrible pain and numbness and tingling in all of my extremities. I landed up in the Emergency Room, and have been to my pcp, neurologist, cardiologist. I was diagnosed with vaccine induced peripheral neuropathy, as well as tinnitus, and bulging veins in my arms and legs. I went from a happy and healthy individual before I took the vaccine to someone who now has constant pain in my extremities with a Constant ringing in my ears and veins that I never saw before and look twice the size of the ones I had before. It’s been a nightmare that I have not been given any clue as to when it will end.

I totally support you, am sorry for what you are experiencing, and understand your feelings. I posted early on and since then have read post after post about those of us with similar experiences. We might differ in exact symptoms or history but we are the same - we had the vaccine and then we had neuropathy - either a flare or a new experience altogether. My symptoms subsided after two months, but then resurfaced and have continued on and off since then. I have received no acknowledgement that this is vaccine related and even though I begged - I couldn't get a round of steroids just to see if it would help. i want to believe that in the future there will be full acknowledgement of this adverse effect but more importantly there will be help for us that are affected. Surely, a protocol can be developed. If there was something more I could do to further this cause, other than report it, I would. In the meanwhile, we need to recognize and support each other in any way possible. If it wasn't for the posts here, I would have thought I was totally alone.

I too never had neuropathy until I took the first Moderna vaccine over 13 weeks ago. Within a week I was suffering from terrible pain and numbness and tingling in all of my extremities. I landed up in the Emergency Room, and have been to my pcp, neurologist, cardiologist. I was diagnosed with vaccine induced peripheral neuropathy, as well as tinnitus, and bulging veins in my arms and legs. I went from a happy and healthy individual before I took the vaccine to someone who now has constant pain in my extremities with a Constant ringing in my ears and veins that I never saw before and look twice the size of the ones I had before. It’s been a nightmare that I have not been given any clue as to when it will end.

I totally support you, am sorry for what you are experiencing, and understand your feelings. I posted early on and since then have read post after post about those of us with similar experiences. We might differ in exact symptoms or history but we are the same - we had the vaccine and then we had neuropathy - either a flare or a new experience altogether. My symptoms subsided after two months, but then resurfaced and have continued on and off since then. I have received no acknowledgement that this is vaccine related and even though I begged - I couldn't get a round of steroids just to see if it would help. i want to believe that in the future there will be full acknowledgement of this adverse effect but more importantly there will be help for us that are affected. Surely, a protocol can be developed. If there was something more I could do to further this cause, other than report it, I would. In the meanwhile, we need to recognize and support each other in any way possible. If it wasn't for the posts here, I would have thought I was totally alone.