Hi Teresa, thanks for your reply. I'm dealing with pain in my back that seems continual, I'm doing ok but did a few hours in the ER yesterday due to extreme symptoms at one point. I'm only just getting to a few dr's. Tomorrow I will see a Kidney Dr. that is good and willing to help me look at this symptom batch. Next I have a Gastro sched. for the first week in Jul. I've only consulted with my GP until now. However in the past three years, I've had appointments with three separate gastros. I have a few years of symptoms such as digestion problems and back pain, but getting to the pancreas is just now happening. If the diagnosis from these next two specialists does not reveal an answer, I very much want to pursue Mayo due to the much greater experience and ability to connect the dots as they say. I have great difficulty with my diet. There only are a few things I can eat at this point. And yet I still seem to have reactiods as i did this week. I will save on my browser those recommendations you have made and going forth, they should be very valuable, thanks so much to you and the moderator!!!! At this point I have to go one step at a time, but I need an answer I hope and pray, as this kind of sensitivity to food is a real drag and leaves me tired much of the time.

Hello Again: We are at MGH in Boston and they have told us that his cancer is confined to the pancreas but it is not operable at this time. They have communicated hope that the chemo Folfiorinox will be approximately 4 mos and then radiation another 6 weeks, hopefully followed by surgery at the end of the year. The goal is to get the tumor to come away from the blood vessel so they can operate. I have read in the Mayo lit that PET imaging is important in guiding the therapies. I know they don't use PET at many other places. How important is it? Anne