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Neuropathy: Numbness only, no pain

Neuropathy | Last Active: Nov 14 3:29pm | Replies (508)

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@daviddemello

my particular experience with peripheral neuropathy began about 5 years ago, but upon reflection, with my wife, I believe its etiology was much longer. Perhaps decades. A heaviness in my left leg stopped me from running decades ago, the dragging of my left foot, poor Babinski reflex, foot drop symptoms were all part of a growing list of subliminals that I adapted to and categorized as the aging process. Then one day I called my pain doctor about a change in symptoms that I no longer remember. His nurse called me back and said get to a neurologic clinic ASAP. Whenever I asked for elaboration the nurse repeated the phrased "Get to a neurologic clinic ASAP." IE NOW 3 days later I arrived for my appointment.. Not very ASAP but the earliest one available. The long and short of it after the usual bank of blood work, electrical tests, scans I was diagnosed with nondiabetic "Severe Axonal Peripheral Neuropathy." . I also suffer from foot drop, a condition the doctor falsely thought I would spontaneously recover from. I am lucky because I have no pain and take no drugs. I try to walk at least !.5 miles a day with 2 canes and do 3 to 5 miles on a stationary bike at 1 mile per 5 minutes. I now work at it every other day. My personal observation is that my condition fluctuates with sleep and food. The best effect from food comes within an hour after eating. I also noticed that I can walk off initial fatigue about halfway into my walk. I will be 80 in a few months. Assuming I constellate somewhere within the spectrum of peripheral neuropathy, I hope there is value in my contribution. I am lucky indeed; no pain.

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Replies to "my particular experience with peripheral neuropathy began about 5 years ago, but upon reflection, with my..."

Hello @daviddemello, Welcome to Connect. Thank you for sharing your experience and journey with Axonal Peripheral Neuropathy. It sounds a lot like my own experience except I don't have foot drop and my diagnosis was after 20+ years of living with the worsening symptoms of numbness and no real pain before getting diagnosed with idiopathic small fiber peripheral neuropathy. I recently turned 78 and also think that exercise and healthy eating is a must along with a good nights sleep. There is much value in sharing as the more we learn about our condition the better we get at asking the right questions and finding treatments that offer some relief.

You may be interested in a few other discussions:
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Does anyone find that a type of shoe helps your foot neuropathy?: https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/
-- Young adult with idiopathic sensory axonal neuropathy: https://connect.mayoclinic.org/discussion/young-adult-with-idiopathic-sensory-axonal-neuropathy/

Have you done any research into your diagnosis of Axonal Peripheral Neuropathy?