← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "A family member was recently diagnosed. I've done some reading but not clear on the bronchiectasis...."
@retyured, as @tdrell, Terri mentioned below in her post my Mayo doctor said it is a chicken/egg thing. Many MAC patients present with Bronchiectasis .. some do not... they do NOT know which comes first the MAC or the Bronchiectasis. Truthfully it does not matter .. it just plain needs to be treated and lived with. BUT if you have both it is imperative that you practice good "lung hygiene" meaning that you get the mucus UP and out because the mucus can be a breeding ground for more mycobacterium.
If you are interested in understanding Bronchiectasis you could sign up for the below newsletter https://bronchiectasisnewstoday.com/2017/01/05/antigen-presenting-cells-may-contribute-inflammation/
If you want to know more about MAC .. a good general info:
VERYGOOD INFO http://www.maclungdisease.org/more-mac-information (except: " be “cured” of their MAC lung disease. .. Dr. Aksamit considers it 'stabilized' .. NOT 'cured'.")
GOOD INFO http://nordphysicianguides.org/wp-content/uploads/2015/10/NORD_Physician%E2%80%99s-Guide-to-NTM.pdf
GOOD INFO: http://maclungdisease.org/frequently-asked-questions https://www.ntminfo.org/faq/glossary
GOOD INFO: journal article led by Mayo Clinic's Dr. Timothy R. Aksamit. http://www.resmedjournal.com/article/S0954-6111(13)00379-X/fulltext
Hope the above help! Hugs! Katherine