@nanny2aak, Welcome .. so glad you found us! Do you have a first name .. so much more personal. If I was sitting in your shoes .. the FIRST thing I would do is find a GOOD Infectious Disease doctor since you have had MAC, Bronchiectasis, plus a fungus etc. How do you do that .. well reaching into my File Cabinet this is what I'd do:

1. Google: Infectious Disease Doctors in your area
2. Google each doctor .. see where they went to school .. my opinion .. the better school they went to .. the smarter they probably are
3. look for doctors photos (can be years old) that appear young enough to have newer knowledge but old enough to have good experience
4. call their office .. ask for a nurse to call you back .. if they ask why .. tell them you want to know "how many MAC patients has this doctor treated in the past 12 months?" If they don't even know what MAC is .. there is your answer!
5. when you find a doctor who has treated 12 or more MAC patients in the past 12 months .. GET an appointment .. THAT one will know how to treat you!
6. I would collect AN/Y/ALL medical records I could get my hand on from ANY/ALL doctors you have seen. It may take them emailing you Authorizations for Release of Information .. BUT DO get started.

I would also recommend that you start reading past pages of our Forum .. there is SO much knowledge to be gained from our pages .. and remember "Knowledge is Power" .. the more you know about your diseases .. the more you can act as your OWN best Advocate! Why? Because NOBODY cares about your body as much as you do .. and unless YOU take care of your body .. it CANNOT take care of YOU for the rest of your lifetime! SO get started Girlfriend! Also, as you read please feel free to come back with ANY questions you may have .. we all have walked this journey ourselves and will be here for you! Sending you a hug! Katherine