← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@karinaph

Chris, thank you for this valuable information. So glad you found a “ cure”. I will check with my personal sources and my doc and perhaps look into this. How soon did you get results? Did you taper off P and take the LDN at the same time? At what level of P were you when you you started the LDN?
I was hit with PMR at age 67. I feel strongly that the shingrix vaccine is what triggered my response. I already had a thyroid syndrome ( autoimmune) which now is known to be risk factor for getting the shingrix vaccine, as their info now disclosed that PMR could be triggered. Huh, alittle late for me and countless others! Oh well here we all are. Thank you for your insights. Best to you. Aloha

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Replies to "Chris, thank you for this valuable information. So glad you found a “ cure”. I will..."

Glad I could help I was on prednisone for nine months each time and when I got down to the last .5 mg I would have a flareup within a few months that is when my doctor r gave me a prescription for the LDN I started it with a low-dose and over two months got the LDN to 4.5 without any prednisone.

I get it compounded at a pharmacy on the mainland.

Like I said it doesn't work for everyone but it was a game changer for me.

Aloha & good luck