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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
I am in remission after 4 or 5 attempts over 5 years to get off prednisone . I started a drug the needs to be compounded into 4.5 meg it's called LDN (Low dose naltrexone) it's a game changer for me. Doesn't work for everyone but my doctor and his wife who is a naturopath suggested it two years ago August and I have not had a flareup. I still don't know where the PMR came from all I know almost sent me to a nursing home i'm 68 years old and live in Hawaii.
Replies to "I am in remission after 4 or 5 attempts over 5 years to get off prednisone..."
Happy that it's working for you. I'm also on 4.5 for RA (diagnosed with JRA 40+ years ago). I realize this is an old thread, but was hoping to find out which doctor prescribed it for you, because I'll be moving to Hawaii this summer and need a doctor there who will prescribe it. Thank you
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Chris, thank you for this valuable information. So glad you found a “ cure”. I will check with my personal sources and my doc and perhaps look into this. How soon did you get results? Did you taper off P and take the LDN at the same time? At what level of P were you when you you started the LDN?
I was hit with PMR at age 67. I feel strongly that the shingrix vaccine is what triggered my response. I already had a thyroid syndrome ( autoimmune) which now is known to be risk factor for getting the shingrix vaccine, as their info now disclosed that PMR could be triggered. Huh, alittle late for me and countless others! Oh well here we all are. Thank you for your insights. Best to you. Aloha