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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
I was just diagnosed with Mac after spending a week in the hospital with flu b and had a bad cough went to see pulmonologist and put me on inhalers and neubulizer breathing treatments at home.Sent out sputum to check for TB and told me I have Mac! Scared not coughing anymore??? Wants to start antibiotics on Monday??
Replies to "I was just diagnosed with Mac after spending a week in the hospital with flu b..."
Turbo....have they done a CAT scan of lungs??? Have they had 2 of 3 sputum specimens that grew the MAC??? I have more questions re why the rush to treat the MAC...my local doctors were in a rush to start me on the antibiotics....but I went to National Jewish Health in Denver....they said NOT to take the meds. Terrid
They did a cat scan in the hospital then I was referred to a pulmonologist after I got released took a sputum they sent it out for TB but came back negative then 2 weeks later I got the news I have Mac!! Trust my doctor just surprised I work in a hospital as Med surg Tech so I know so medical stuff!! Thanks for responding to me look forward to receiving information about this!!❤️
@turbo First: welcome...you have a MACfamily here! (get it...like Mcnuggets?...bad, eh?). Second, do not start antibiotics until a bronch is done and the specific antibiotic to which your MAC is sensitive is determined...this takes time, but since you're not coughing you're not spreading it so you have some time. Third, don't berate yourself for not knowing about MAC as a medical professional....lots of docs know little to nothing about it which is why it's spreading so prolifically.
Yes bad cough non productive doing breathing treatments inhalers then cough syrup with codiene and it stopped and I got rest . Then I got one sputum up and sent it out for tb and 2 weeks later told I have MAC!!
<br><br><br><br><br>Hi there. Just saw this post tonight. Wondering how you are doing <br>now? -Terri M.<br> <br><br>
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Welcome to the MAC forum, @turbo. I'm so glad you found us. This can be a scary time. I'm encourage you to read through the past messages of this discussion thread. You will see that many of the members have been treated with antibiotics. Allow me to introduce you to a few members to get you started. Please meet @heathert @Paula_MAC2007 @21042 @lindam272 @beatitnow and @kaystrand. They will accompany you as you start treatment on Monday.
As you read through the past posts, you may have questions for particular members. Simply add their @username in your message and they will be notified by email that you've referred to them specifically.
Turbo, were you coughing a lot before and now the coughing has stopped? This worries you?