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Teresa,
Thanks for including me in the response.
@kapple - I am more than happy to share my experience. In the short story version - I have been a patient at Mayo Clinic for multiple recurrent insulinomas since 2017. I have a fantastic endocrinologist at Mayo who does specialize in insulinomas. His name is Dr. Adrian Vella. I am so very happy to be a patient at Mayo and know I am in great hands. My case is a bit complicated in that I had 2 insulinomas removed in 2015 in NC and 9 more removed at Mayo in 2017. I have 2 more that are inoperable so I continue to be under Dr. Vella's care for medical management of the insulinomas. I feel blessed to have been connected with Dr. Vella and Mayo Clinic. If there are any questions I can answer, please let me know.
Replies to "Teresa, Thanks for including me in the response. @kapple - I am more than happy to..."
hi hopeful, My blood work was always within range however I suffered from Extreme fatigue and weakness, diabetes like symptoms even including neuropathy -a gallium 68 scan confirmed a small insulinoma which would explain a lot of my issues- I dread the thought of flying to the East Coast due to my condition however I will check into it thank you for the information- I have also heard of John Hopkins that deals with an insulinoma are you familiar with this hospital?
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Hello @ahtaylor
Thank you for your response to both my question as well as responding to @kapple. I'm glad to know that the Victoza is providing some relief for your blood sugar drops. Any relief improves the quality of life
@kapple, I would like to point out that both @ahtaylor and @preeti have flown to Mayo in Minnesota as they both live on the East coast as I recall.