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@carlies

mdoll: I am sure he has toxins built up! He started with Keytruda. Was on that from 3/2019 - 11/2019. Then had some radiation for spine bone lesions. Then was put on chemo (Alimta + Carboplatin + Keytruda) from 12/2019 until 5/2020 because the cancer got a bit worse while on only Keytruda. His regime including the Carboplatin was cut short due to toxicity. He received 2 chemo doses with it instead of 4. He then continued with Alimta + Keytruda. Was given a chemo 'vacation' in April/May of 2020, but had some more radiation for other spine bone lesions (pain) in July during the 'vacation'. In ?August? he went back on Alimta + Keytruda. He has had a couple very brief breaks from chemo (at the times he felt he needed a break). However, the Alimta/Keytruda continues... No one has ever indicated there are problems with his blood work. His RBC is not terrible right now - all things considered. -That's not to say his red count hasn't been worse - cuz, yes, he has been transfused - twice. What did you notice on your labs?

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Replies to "mdoll: I am sure he has toxins built up! He started with Keytruda. Was on that..."

My absolute neutrophils were very high, I told them I had intermittent burning when I went to the bath room, because the WBC was at almost 14 I wanted a urine test she said she would be more comfortable taking it during the burning--I called my PCP and she did the urine test I had a severe UTI on anti bio. 1960 mgs for three days. Don't wait for them to say something (you) check because they just want to do more test and I believe if you have good insurance they will TREAT you to death. I told my Dr. if the next PET//CT doesn't show any cancer I will stop- the Keytruda -she almost fell of her chair I only have one very small nodule on my lung-- It cost my Insurance $25 thousand every time I walk through the door plus Her fee the blood draw it 's a money maker for them. So I question everything.

@carlies Hello, you’re dealing with some of the confusing complexities of oncology—lab work. You said that no one has indicated a problem with your husband’s lab but that he has gotten some blood transfusions. As a former oncology nurse, I would suggest that you ask for copies of his lab reports every time and then highlight the date, WBCs, RBCs, platelets and neutrophils. You might even make a simple graph to keep better track of things. See if that helps
Becky