You are most welcome @helenlodahl. Some of your symptoms of MS is what I deal with having Chiari Malformation and Syringomyelia. Everyday we wake up and make the decision to remain positive and push thru whatever is thrown at us that day. At times it is hard to remain positive. When that happens, I allow myself ten minutes to cry and feel sorry for myself. I then say to myself…..”Nancy, pick yourself up and start fighting. Chiari and Syringomyelia watch out as you have messed with the wrong girl!”

I have received compliments from doctors and others that I am always so positive. (My parents taught me growing up that I should always be thankful as there are people that have it worse than me. This lesson has served me well dealing with my Chiari and Syringomyelia.) I then tell them “you don’t see me at those times when I am not”. I never fight to keep those times from happening as it needs to happen for me to be able to move forward in my daily journey navigating my life living with Chiari and Syringomyelia.

My Mayo doctors are so supportive. I feel I don’t need to worry about my future as they have my back and are walking along with me on my journey. I feel them there each and everyday. Which I can’t figure out how they do it when I live five hours away and see them once a year. They are truly a gift from GOD and I find great comfort in that.

So in closing @helenlodahl keep fighting each and everyday! Whether it is looking for the right doctors, medical care or just trying to get thru the day. Take time for yourself. Whether it be pampering yourself or grieving for what you have lost. Don’t be afraid to ask for help when you need it. Sending you prayers, hugs and positive thoughts as you continue to navigate your journey living with MS.