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How to Search on Connect - It can help you!

Just Want to Talk | Last Active: Oct 11 9:31am | Replies (82)

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@helenlodahl

I was diagnosed with RRMS twenty-four years ago. Six years. ago, I progressed to SPMS and had to go on disability from work. For the last nine months my legs have been getting progressively worse. An MRI in October, 2020 showed new lesions on my spine relating to my leg problems. I've gone from being able to walk every day to struggling to walk every day, doing yoga three times a week to not at all because of legs weakness. I just contacted the Mayo Clinic hoping for an appointment with the MS doctor(s). I'm not sure what to hope for by seeing the MS doctor(s), but I'm hoping they can help me. Does anyone have any experience seeing the MS doctors at the Mayo Clinic? I see a Neurologist in my hometown. I need to see a doctor that wants to help me and not just chalk it up to "another flare" or residual from a past flare that could last up to a year. Any help you can offer would be greatly appreciated.

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Replies to "I was diagnosed with RRMS twenty-four years ago. Six years. ago, I progressed to SPMS and..."

@helenlodahl I have been a Mayo patient (Rochester MN) for almost six years. My personal experience is with the neurology dept. Not with MS, but I am in agreement with @loribmt. That is exactly what I have experienced with the neurology dept. I actually look forward to my annual appointments with my entire Mayo (neurology, neurosurgery, orthopedics) team. I consider all those individuals part of my family. I am excited as only three more weeks and I will be seeing them!!!