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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
You're right Becky, thank you for your words of wisdom.
I'm not sure how true it is but I have heard that you can go into remission with autoimmune diseases. Where you may feel normal for a few days only for your symptoms to remerge. I've probably gone from 55% to 75%. Which is a drastic improvement that I'm grateful for, but something clearly isn't right.
Absolutely, I'll probably go quiet for a while as my consultation isn't until next month. If anything drastic changes I'll post an update, all the best.
Replies to "You're right Becky, thank you for your words of wisdom. I'm not sure how true it..."
Yes, definitely go! It was my neurologist who ordered the correct labs to lead me to at least a partial diagnosis, and more importantly to a rheumatologist and a hematologist. Without those labs and follow up referrals I’d still be nowhere. I find my symptoms do change and certainly vary in severity.
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GO!!!!!!! Don't delay. You must take advantage of every opportunity to see whomever possible, and you must be your own advocate. Becky is so wise and you are going to find out what's causing you these problems. Yes, something may improve and in a few days get worse or something else may happen, you don't know. Find out what is happening, get a solid diagnosis and treatment and get it under control.
Goody! You see a neurologist! Giant step forward. Best and blessings, elizabeth