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The Wages of a missed Neb session.

MAC & Bronchiectasis | Last Active: Feb 3, 2022 | Replies (66)

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@sueinmn

You are so right. I live that 24/7 with my husband who is diabetic, arthritic & has a hearing loss and have now added my 41yo daughter, who has chronic health issues and is recovering from a badly broken wrist & surgery.
This morning one of my best friends is in the ER with her husband, who is blind, has COPD and kidney failure, once again because he refuses to drink water and everything goes "kaflooey."
Sometimes, the best thing we can do is take a step back and be quiet for a while, then when the next crisis arrives, try to clue the doctor to what is going on and get her/him to press treatment options.
Another tactic I have tried with some success is to pick a clam moment and address how ONE aspect of their health impacts me (eg When you get low blood sugar, I get scared, it makes me worried that you are going to get sicker and we'll have to quit traveling, and I don't think I can do "XX" without your help. I would like to help keep it controlled better by giving you small, healthy snacks to eat even when you don't think you are hungry. Is there anything I else I can do to support you?)
Sometimes it takes 2-3 reps to sink in. Maybe your wife is reluctant to get into the fun of nebulizing, sitting, then cleaning...can you possible offer to take care of set up and cleaning of her equipment, and provide books, puzzles to work on? I tolerate nebbing better sitting in front of a fun jigsaw puzzle.
Sue

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Replies to "You are so right. I live that 24/7 with my husband who is diabetic, arthritic &..."

Thank you! Great advice! I am thinking, "Is there anyone else out there that has to use tactics to get stuff done"...Can't use the same to often though...Gotta be creative. Not going to be defeated by this virus or whatever it is. Each day is a new day. brush off all of yesterday and hope today will be a "springboard" for tomorrow...

Comments on this site is what keep me going...

As far as. any medical apparatus setup, I have been doing for the past 19 years, all she has to do is, as Nikki say, "Do it". Not bragging, just statement of fact, I make it very easy, even down to setting up the "pill boxes" weeks in advance. Wife is a Liver Transplant Recipient of 19 years and has to take the "Anti_Rejection" meds, so keeping it straight and ready in a timely manner is important. The downside of the anti rejection stuff makes her variable for everything that others might have...It has been tough during this time of Pandemic, but so far she has weathered the "storm"...

Yes! I have bee setting up her medicine trays for the past 20 years. There is nothing I will not do, if only I can get her to agree to do it. It is just when she set her mind on not doing something, no matter how much it might help her, she will not do it.Right now, the doctors are suggesting Insulin to control her blood sugar, but she is saying "no way"....So I am in a "wait and see" posture...