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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hi everyone. This is Amy. I wrote a couple weeks ago saying I was starting on Clarithromycin last week, and I started on Rifampin this week. (@katemn...I started on this one because I have to get my baseline vision test this week before I start Ethambutol). So, my first day of Rifampin was yesterday (Monday), I took it at 6:00am. At 1:15 am this morning (Tuesday) I had a pretty bad headache...I managed to get a little more sleep, but I still have the headache this morning. Questions:
1) Has anyone else had a headache as a side effect of Rifampin?
2) If so, did that side effect go away after your body adjusted to the medicine?
3) I just called Walgreens to see if I am okay taking Tylenol or Naproxen. My head usually responds better to Naproxen. They said I was okay taking it short term. Did anyone else have to take either Tylenol or Naproxen for a little while on the 3 drugs?
Thank you for your help, if you can! Amy
Replies to "Hi everyone. This is Amy. I wrote a couple weeks ago saying I was starting on..."
Hi Amy, this is Kathi. Yes, i did get terrible headaches in the beginning, but they've mostly subsided after about a month. I'm now on the 3 meds about 2 1/2 months. Nausea is mostly gone now , and i did lose about 12 pounds. I find the worst part now is fatigue. I'm not used to it as i've always been so active. My doctor said that may get some better as time goes on. I had a good- sized mass on the right lung two months ago that my doctor suspected was a glob of MAC, but when i got the second CT scan after two months, it was about two thirds gone, so no biopsy is necesary. She and my husband and I are so happy with that news. It sure was a rough ride in the beginning, but my advise to any one is don't give up. It does get better. I'm living proof! Oh yes, I took tylanol for headaches. It worked pretty well. Kathi(21042)
Yes, Aleve is Naproxyn, and anti-inflammatory...I take for my RA...works very well, and not quite as hard on the bod as Tylenol. I also take something for the stomach to keep acid reflux away...
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I did not have headaches that I recall from the meds. Before and while on the antibotics I did however take 2 extra strength tylenol almost daily for unexplained fevers. I now am able to take 1 aleve (Naproxen I believe) for my fevers instead of the tylenol (and still on the antibotics) I feel it might help me better with any joint aches if I have them. So not sure why the pharmacist seemed to indicate they are okay for short term, unless it's just they are harsh on your stomach.