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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@dhamil

I’m sorry I meant to say Pfizer not J&J. I guess I inadvertently said that because I’ve been wondering if it was safe/helpful for me to switch to J&J from Pfizer. But sadly That’s probably not going to help because from what I’ve been reading on here people have gotten neuropathy from all 4 vaccines. The worst part is we are reporting it but no one is acknowledging this is happening much less giving us any kind of guidance when it does. I symptoms started 18 hrs after my shot and continued to worsen. My PCP said don’t get the second dose but my neuro
advised to get it no matter how much more pain it caused. I don’t think he believed me, he said he hadn’t heard of any other patients reporting this. As bad as I wanted to be protected from covid to live a normal life again, hug my grandchildren, I just couldn’t bring myself to do it. Now, After One shot I’m left with not much immunity and most likely permanent pain! And no answers from Pfizer or the CDC on this.They deny it’s related. We all can’t be a coincidence! Wishing you continued improvement.

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Replies to "I’m sorry I meant to say Pfizer not J&J. I guess I inadvertently said that because..."

I don't know if I would be so quick to assume the pain is permanent. Many of us have experienced relief over time from our symptoms, some with medication and some without. If your neurologist doesn't believe you, perhaps it is time to contact someone else.

The neuropathy side effect is on the radar of the CDC and the manufacturers, it is just a matter of determining how frequent, who, etc - all will be part of the official review for permanent approval.

Sue

I wrote to Anne Louise Oaklander but i didn't get any reply. Same thing in Italy. Neurologists do not express any opinion about vaccine and neuropathy