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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6026)

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@johnbishop

Hello @jamesbstarkman, @pennellsp and @terrialbert, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. We are happy that you have jumped right in and shared a little about your neuropathy journey and what is helping you. One of the best things you can do is learn as much as you can about your condition and become become a better advocate for your health.

My two go to places for neuropathy information when I want to learn more are:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

When I'm searching for research and medical type information I also use Google Scholar (https://scholar.google.com/) a lot to find the most recent information. You can sort the results by year which makes it a little easier to find the latest published information.

You may find the following discussions helpful:
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Small Fiber Neuropathy burning?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-burning/

What worries each of you the most about your neuropathy diagnosis?

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Replies to "Hello @jamesbstarkman, @pennellsp and @terrialbert, Welcome to Connect, an online community where patients and caregivers share..."

My periodic reminder to fellow numb handers is to consider a Bidet for the toilet to eliminate the need for toilet paper. Available where plumbing supplies are sold, less than $80.00 and an easy do it yourself project.