Hello All, brought to my attention something that I thought was REALLY interesting since our group has several times mentioned hoping that the day comes when various forms of research results in better treatment for our lung diseases .. so I thought I'd mention the below. It just confirms my belief the importance of having a GOOD working relationionship with a GOOD doctor who truly understand your medical situation who you could THOUOUGHLY discuss the pros and cons PRIOR to deciding to get into any medical trial. Remember .. knowledge is power! Hugs! Katherine

Read: "The Washington Post reports that an article in the New England Journal of Medicine suggests patients are being fooled by clinical trials that wind up on the NIH's internet data base without assurance that the trials are safe and promising."
https://www.washingtonpost.com/news/to-your-health/wp/2017/03/15/three-women-blinded-by-unapproved-stem-cell-treatment-at-south-florida-clinic/?utm_term=.478d55d46029
and ""Unapproved clinical trials are able to list (their) study on a comprehensive database of clinical trials called ClinicalTrials.gov (https://clinicaltrials.gov/), which is run by the National Institutes of Health (NIH). At least one of the patients — and maybe more — believed that she was taking part in a government-sanctioned study," he said.
"Paul Knoepfler, a stem-cell scientist, said that allowing the clinics to list their trials on ClinicalTrials.gov is 'almost like a form of advertising for products that don't have FDA approval. That's really problematic.' "