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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)
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@cgent

Thanks for the reply ... Tom here. What bothers me most currently is that I have tiny but noticeable sore spots above my left ear, think they are just pimples from an oily scalp as a result of Prednisone. I worry too much about constant details. Thank you for replying John. Like to hear more from you to discuss beginning and ... hopefully ... ending of PMR

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John, Volunteer Mentor | @johnbishop | Jun 2, 2021

I was first diagnosed with PMR in 2007 and started 20 mg prednisone. Took about 3-1/2 years to taper off prednisone. The last six months I went between 1 mg and 1/2 mg until I could finally stop taking it with only minor aches. The PMR stayed in remission until 2016 and again I started 20 mg prednisone. I was able to taper off in about 1-1/2 years and I’m hoping it stays in remission. I have learned to change my lifestyle some to help - exercising more and eating healthier. I had a friend about my age that was diagnosed with PMR about the same time as myself in 2007. He was off of prednisone within a year and it hasn’t returned. I guess I can chalk it off to we are each a little different in the way it affects us.

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