← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion

Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
Comment receiving replies
@cgent

Thanks for the reply ... Tom here. What bothers me most currently is that I have tiny but noticeable sore spots above my left ear, think they are just pimples from an oily scalp as a result of Prednisone. I worry too much about constant details. Thank you for replying John. Like to hear more from you to discuss beginning and ... hopefully ... ending of PMR

Jump to this post

Replies to "Thanks for the reply ... Tom here. What bothers me most currently is that I have..."
John, Volunteer Mentor | @johnbishop | Jun 2, 2021

I was first diagnosed with PMR in 2007 and started 20 mg prednisone. Took about 3-1/2 years to taper off prednisone. The last six months I went between 1 mg and 1/2 mg until I could finally stop taking it with only minor aches. The PMR stayed in remission until 2016 and again I started 20 mg prednisone. I was able to taper off in about 1-1/2 years and I’m hoping it stays in remission. I have learned to change my lifestyle some to help - exercising more and eating healthier. I had a friend about my age that was diagnosed with PMR about the same time as myself in 2007. He was off of prednisone within a year and it hasn’t returned. I guess I can chalk it off to we are each a little different in the way it affects us.

VIEW AND REPLY