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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
Replies to "I'm new to this medium and a bit lost. PMR since January. Seeing a rheumatologist in..."
I feel your perspective. Wow, you are so fortunate to be at 2 mg in just6 months. That is remarkable. I can asset to getting GCA symptoms and it did freak me out. I had to go back up to 20 mg and am tapering very very slowly. I’m at 7.5 and will only taper by .5 mg / month.
Just be aware of pain in head, in my case it felt like bruising not a
“ headache” and jaw discomfort and visual distortion. If you’re at 2 mg you are well on your way. Try not to obsess about the GCA, I know it’s very frightening. Keep up the good work!
Hello @cgent, Welcome to Connect. Thank you for sharing your experience with PMR. It's great to hear you are down to 2 mg prednisone since diagnosed in January. Slow and easy is a good way to taper and exercise really helps. Stress can make things worse so I'm guessing staying busy helps keep your mind away from worrying about temporal arteritis. From what I've read about 15% of people with polymyalgia rheumatica also have temporal arteritis which is about 1 in 5 odds of developing temporal arteritis if you have PMR.
I think it's important to keep doing what you are doing and be able to recognize the symptoms of temporal arteritis (https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758) so that you can address it early. When I first was diagnosed with PMR my rheumatologist and my primary care doctor would always ask me if I had any pain or tenderness in the scalp area or temples which would be an indicator among other symptoms.
It sounds like you live a pretty healthy lifestyle, have you made any other changes since being diagnosed with PMR?