Hi Diane -- nice to use your name! Thanks very much for replying.

You are not alone in having problems with Arikayce -- quite a lot of people are forced to drop out due to big side effect problems. Up to one third of all people who are put on it apparently.

Like you I wish I was one of the people who could just sail through without too much trouble!!!

Did you also have breathlessness -- even after using salbuterol -- and much worse lung problems when using Arikayce? (I know it makes many people cough a lot, but I mean worse bronchiectasis or lung disease as well).

I really don't know what's happening. Today it's so rough I think I might either have to delay the Arikayce or stop it for a day -- every day is getting worse on my lungs.

Diane, Heather, Irene (@goatlady, @heathert, @irene5) and Jenny, while on Arikayce, did any of you also feel like your lungs were really getting kicked around and / or feel a lot more breathless too?

Annie

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