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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
@katemn and anyone else interested....Thank you again for your advice, encouragement, and general reminders!....I need that every so often. Okay, so today is my big day...I start my first med today in one hour...my doctor wanted me to start with clarithromycin. Then I will start the next two in the next two weeks as you and my doctor had mentioned. Any advice on the order of the second two drugs I will introduce...I will be taking rifampin and ethambutol in addition to the clarithromycin this week. I was wondering if anyone else has a preference as to which drug to introduce second.
I am going to take your advice, Kate, also and do Rifampin first thing in the morning at 6:00 am with a probiotic before that by 5:30am. I plan to take Clarithromycin and Ethambutol at 9:30 (I am going to try on an empty stomach like you mentioned), take vitamins about 3:30pm, and a probiotic or two before bed. If anyone has any comments or recommendations with my "first draft game plan" I am open to hear any of it! I realize this is my "wish list" but we will see how my body reacts, and I will adjust as needed. Thank you for any and all help or advice! Amy 🙂
Replies to "@katemn and anyone else interested....Thank you again for your advice, encouragement, and general reminders!....I need that..."
@beatitnow, Amy I do NOT want to put concerns in your head .. BUT for me Rifampin was the tougher one for me so I would start it last. My only side effect was sleep disturbance and kind of "restless leg" at night which ended when the med ended .. EVERYONE is different so do NOT think my experience will be YOUR experience .. but that is why I took Rifampin first thing in the morning. Anyone else jump in with their thoughts?? Please do! Hugs to all! Katherine
@irene5, Man alive Irene .. if you had a doctor who told you to "call him any time day or night" .. you are one blessed gal! WOW! I would go out on a limb and say you might be the ONLY one on the Forum who got THAT message! Lucky gal! So happy for you! I think the rest of us kind of have to slug it along .. AND I SO agree with your statement "you know your body best. You will need to listen to it and it's infinite wisdom" Think I will add that to my File Cabinet .. love it! Good advice .. thank you for jumping in .. we are one great community .. that is why we are so strong .. love it! Hugs to all! Katherine
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I think Katherine's game plan is the best Amy. The only difference for me was the Ethambutol I had to take two tablets in the a.m. and three before bed. The rifampin was also at night, but like Katherine said you know your body best. You will need to listen to it and it's infinite wisdom. And call your doctor when you need to! Mine told me to call him any time day or night. Try not to worry. And I also know that is easier said than done. Some of us tend to have that as our middle names. Faith would be a better one! Irene