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twocents (@twocents)

Total Gastrectomy: What can I expect?

Cancer | Last Active: Jul 7 10:28am | Replies (19)

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@twocents

Thankyou for the info Colleen. Mayo is taking good care of us. We have appointments with three different dietitians a few Days before the surgery. The days before the surgery are full of tests, consults with the oncologist, radiation oncologist, and the surgeon. I’m overwhelmed already! I’m sure it will be exhausting. Thankyou for your help.

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Replies to "Thankyou for the info Colleen. Mayo is taking good care of us. We have appointments with..."

@twocents I can only imagine how overwhelmed you must be. So many different people telling you so many different things and most of them “speaking a foreign language.” By that, I mean so many different words and procedures. My big suggestion to you (from my own experience), is to get a good size notebook and start religiously using it. When I got sick 3 years ago, my husband started a notebook and wrote Everything that anyone said or did. It was several months before I could really comprehend what was going on but he had carefully written it all down. I now keep my own notebook with sections for my PCP, the neurologist, the oncologist, physical therapy, etc. I hope this will help. As a former oncology nurse, we asked all of our patient’s caregivers to do this and it made such a difference to them.
Will you stay connected and let us know how everything goes?

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