Connect
← Return to Arimidex Pain Starting after 17+ months
Discussion
Arimidex Pain Starting after 17+ months
Breast Cancer | Last Active: Jun 3, 2021 | Replies (32)Comment receiving replies
@mjay this exactly what I experienced with Arimidex. I took it for a year and a half with many painful and Yucky side effects. I had pain and stiffness in my shoulders, legs, ankles, feet, hands, thumbs and back, Insomnia, trigger thumb, fatigue. After trying a six week hiatus, it was still terrible, so twice I changed drugs. My Oncologist prescribed Exemestane. On that medication i experienced severe neck pain, sensitive skin, painful to the touch. I finally went to Tamoxifen. It has had fewer side effects for me. I know everyone has different responses to different meds. This was merely my experience.
Replies to "@mjay this exactly what I experienced with Arimidex. I took it for a year and a..."
Connect
Thanks for your reply. I’m happy the tamoxifen works better for you and helped minimize side effects. I have a lot of the same issues you experienced, plus anxiety and depression and brain fog/memory loss as a result of all the side effects, not to mention fear of recurrence. I can no longer wear my rings as my knuckles are too swollen, likely arthritis taking up residence where I had none previously.
I’m trying to weigh the pros and cons of going off all drugs to maintain quality of life, but it’s such a gamble. I have very dense breasts and they’re always “seeing something” on exam requiring more views so I may be more on edge off the drugs than on them with all the side effects. I have a meeting this week but since oncologists are MD.’s who want to save lives, I don’t envision they’ll be in agreement with going off the drugs, although in the end it’s everyone’s personal choice.
Thanks to all of you for your responses and support on this group as nobody relates to our condition as we all can. 💗