← Return to At a loss, multiple consultations still no answer...any idea?

Discussion
Comment receiving replies
@change25

After a lengthy discussion my parents and I have agreed that going with mayo is the best move. However, with their current availability and my ability of getting there, the earliest possible appointment is looking like 6 weeks away. In the meantime... my parents have kindly agreed that I can get some private consultations nearby. My gut is telling me that it is more than likely parry romberg; where it is fairly tricky to diagnose. What specialist would be best: Rhumatologist, neurologist, dermatologist or something else? I think it is in my best interest to gather as much information as possible. That way when I get to mayo they'll have a better understanding of what's happening.

Jump to this post


Replies to "After a lengthy discussion my parents and I have agreed that going with mayo is the..."

I’m glad you’ve discussed all of this with your parents. Parents can be of great help!
Don’t set your sights solely on Parry Romberg Syndrome. It usually starts in young children. The link I entered is about adult onset (which is rare in an already rare disease).
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6374961/#sec1title
When you mention Mayo Clinic, are you referring to the affiliate in London? That would be your best bet. As for specialty, let the hospital decide. Have you sent medical records to a hospital? Did they include photos of your face?