← Return to At a loss, multiple consultations still no answer...any idea?
DiscussionAt a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Replies to "After a lengthy discussion my parents and I have agreed that going with mayo is the..."
I’m glad you’ve discussed all of this with your parents. Parents can be of great help!
Don’t set your sights solely on Parry Romberg Syndrome. It usually starts in young children. The link I entered is about adult onset (which is rare in an already rare disease).
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6374961/#sec1title
When you mention Mayo Clinic, are you referring to the affiliate in London? That would be your best bet. As for specialty, let the hospital decide. Have you sent medical records to a hospital? Did they include photos of your face?