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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 42 minutes ago | Replies (405)

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@constancebabe

I was taking 600 mg of Gabapentin a day...(I had a spinal cord injury from degeneration)..And while I don’t believe I’ve experienced any memory loss........I did experience water retention and swelling in both of my legs. When I complained to my doctors and their nurses, they didn’t believe it was coming from the gabapentin. They thought my swelling was due to either too much sodium or other reasons… (I’ve never had swelling in my life for any reason) Anyway, I weaned myself off of the gabapentin over the course of two weeks, and as of now I wake up every day with absolutely no swelling in my legs or my feet. So, don’t be surprised if you eventually have swelling and take it from me it’s most likely due to the Gabapentin.

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Replies to "I was taking 600 mg of Gabapentin a day...(I had a spinal cord injury from degeneration)..And..."

I know what you mean about doctors not listening to you I had a heart attack five years ago they put me on so much medicine I started to have hiccups this went on for over a month so bad that my wife called and ambulance to take me back to the hospital they didn’t know why it was happening they even tried thorazine all it did was make me sleepy it got so bad I couldn’t catch my breath so my wife started looking up all the new medicine I was on and found one that said that it could cause problems with your Diaphragm so I stopped that one and two days later no more hiccups so keep telling them what you are dealing with you are your best advocate .

I’m right there with you!,! I had a Corpectomy with fusion less than a year ago because of degeneration in my cervical spine that was pressing on my spinal cord. They had me on gabapentin and I had the exact same swelling in my legs (which I’ve never had any swelling in my life before.) When I mentioned it to the nurse, she said that often happens on gabapentin. When I mentioned it to the doctor, he said ‘No…that’s not from gabapentin.’ I ended up going off it on my own …and just like you all my swelling went away. I’m still looking for something that works for me. I don’t have pain necessarily, but I still have extremely stiff legs and muscle spasms in my back. I’m going back to my neurosurgeon on Tuesday because I’m not getting over the stiffness like we thought, so I’m wondering if my C7 is affecting something now too. (My corpectomy was for C5 and the discs from C4 to C6) Good luck to You. I am 64 and always was VERY ACTIVE…and I’d like to get back to being able to do what I used to do. I never had ANYTHING before…never got colds, flu, ANYTHING….So, I thought I was invincible. (Then I had a ruptured brain aneurysm…which I fully recovered from…but now I seem to have other things. They say it’s unrelated to my aneurysm…so I take them one at a time.)
Sincerely, Connie