Connect
← Return to Has anyone experienced internal vibrations?
Discussion
Has anyone experienced internal vibrations?
Brain & Nervous System | Last Active: 2 days ago | Replies (888)Comment receiving replies
Wow I just spent like a few hours just reading through this thread
@novajeff thank you so much for your detailed recount of everything. When I read your post it sounded EXACTLY what I was going through with the same symptoms and similar timeline and I admit as I kept scrolling I was hoping to come across a post with a "happy ending easy fix".
I'm still at the beginning of the journey of trying to get answers, so far only had:
-MRI of my head and cervical spine. Was told it was fine.
-Regular blood tests that show nothing wrong
-VNG test with ENT (they actually did find some issue with my inner ear!... but not much solution for it)
Due to Covid restrictions everything is taking a while. I'm awaiting a neurologist and the wait is like another year so I'm not going to just sit and wait doing nothing, I'm trying to see if anyone can help me at least ease up the symptoms, going to see chiropractors and osteopaths to see if any spinal adjustments help.
It's been extremely difficult and just as you say it's not exactly 'pain' just severe discomfort and feels debilitating. I'm at the point where I might even try to see more 'alternative healers' and turn to spiritual stuff too.
Replies to "Wow I just spent like a few hours just reading through this thread @novajeff thank you..."
Well, I’m glad my posts at least connected with how you are feeling.
I’ve been meaning to report back more often with “progress” and current condition.
I’m at the 18 month mark now, and I feel like I’m basically at an overall steady state. Lots of weekly fluctuations up and down with some being almost perfect and some being pretty nasty. I’m at a down point now with my legs buzzing non stop, other large muscles popping on and off a few times through the day, tinnitus going, and bad sleep from the muscles working which causes sweating and restlessness.
One interesting thing (minor in the scope of things except it adds to the issue of not good sleep) is that I notice on bad weeks I have non-stop CRAZY dreams. Just bizarre stuff. When I’m feeling better I almost never dream.
The good news is, I’m still active and walking 7-20 miles per week thanks to golf.
Mornings are tough due to crappy sleep, and I always feel like absolute crap when I wake up. Aching and burning skin, leg muscle aches. Just like a got beat up while sleeping.
Knock on wood, none of the nastier symptoms have been back lately (more violet night tremors; tremors in the chest, head, or throat; globus; challenging vocal cord control; weak arm/hand strength).
I have not altered my 3x300/day gabapentin. Vitamin levels are all strong in recent blood work, but I take the mag/calc since it is fine for me anyway.
Personally hoping that I start making progress again towards further healing, but who knows.
For you, hope you make progress soon. It’s a tough, wild ride. Do NOT wait over a year to see a neuro. You at least need the visit for your own mental health. Not sure what area you are in but don’t give up with finding an appointment. Worst case, like I told in my history, go to a good hospital’s ER and get in front of a neuro if you reach a breaking point like I did. I simply couldn’t go on, so I made the choice to do that. In my case, I HAD an active neuro relationship, but he admitted he was out of ways to help and encouraged me to see another.
Best of luck to all.
Hello @deydria and welcome to Mayo Clinic Connect. I'm sorry to hear that you are having these internal vibrations but I'm glad that reading the posts on this thread has been helpful to you. It's always good to share with others who are in the same situation.
I look forward to getting to know you as you are now part of the Connect community. Would you like to share a bit more about your symptoms? For example, when did they start, do they happen continually, or most often when you are tired, etc.
Connect
Check this out
https://youtu.be/NOkUDh3vHVU
I’m in a FB group called internal tremors
Someone just posted this and it looks very interesting to me. Most of us in the group have had these tremors in the past year. Hope this helps you a bit. And most of us have had all the testing done cardiac etc. and they all came back normal. I’ve also had acupuncture and it did nothing so maybe look into this and save your money .