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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@gaylejean, I am REALLY sorry you have not received an answer .. I guess we were all hoping/waiting for someone to jump in who knew what NET was? I just googled it and found: What is a Lung NET? Lung NETs are an uncommon type of tumour that start in the lungs. These tumours can occur at any age with the average onset in the 4th to 6th decade of life. They tend to grow slower than other types of lung cancers. They are made up of special kinds of cells called neuroendocrine cells. Other terms you may come across are pulmonary NET, bronchial NET or carcinoid or lung NET or carcinoid. ‘Pulmonary’ and ‘bronchial’ are both medical terms relating to the lungs
GayleJean, do you mind if I post your question under "Lungs" .. perhaps you might get more of a response from there .. people with the same issue? I will also post the definition I found. I really hope you find others who can support you. So sorry! Katherine
Replies to "@gaylejean, I am REALLY sorry you have not received an answer .. I guess we were..."
Hi Gayle,
If you click View & Reply in the email notice then scroll up 7 messages you'll see my response to your query about NET and MAC.
The short answer is that I could find no evidence that supports a predisposition to MAC if you have carcinoid of the small intestine. Dont hesitate to ask your oncologist if you are worried.
However, I believe you may be causing yourself undue concern by reading the MAC discussions.
If you wish to unsubscribe fro the MAC discussion, please click "unsubscribe" in the bottom of the email.
I hope this helps.
@gaylejean, Gayle, I ABSOLUTELY could not agree with Colleen more! Over the years my husband and I have dealt with numerous health issues .. how? By ONLY dealing with them when/IF they were NEEDED to be dealt with .. NOT putting the cart before the horse .. if the health issue was NOT "in our face" .. we dealt beautifully with it with "denial" .. it did not exist! We just went on with our lives .. happily .. serenely .. as healthily as we possibly could!
Gayle, as Colleen mentioned .. I would just focus on being as happy and healthy as you possibly can .. work out as best you can .. eat healthy .. focus on healthy happy relationships .. work on being as serene as you possibly can .. remembering that stress can damage our health. Sending you a happy healthy Hug! Katherine
Thank you!
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I have been reading all these posts about MAC and don't know if they relate to my carcinoid which is in small intestine. Can anyone answer that? I have not been diagnosed with lung NETs.