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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Dear All, Just read a really interesting article on Bronchiectasis .. not saying it was fun reading .. but interesting! Hugs! Katherine
https://bronchiectasisnewstoday.com/2017/01/31/study-identifies-key-variables-survival-bronchiectasis-patients/?utm_source=BRO+E-mail+List&utm_campaign=aca6507c77-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_d9df0e1c03-aca6507c77-72040541
Replies to "Dear All, Just read a really interesting article on Bronchiectasis .. not saying it was fun..."
<br><br><br><br><br>Yeah, I read it too. It spelled doom and gloom for me because I have <br>multiple serious issues with my lungs. A dead duck so to speak. I am not buyin' <br>it, (because I don't want to). Folks, you don't know me, so you cannot imagine <br>the humor I said this with. -Terri M.<br> <br><br>
<br><br><br><br><br>I didn't reply because I don't know what 'NET' is.<br> <br><br>
Terri, I understand what you mean .. I was hoping someone with similar issues would jump in. Katherine
@gaylejean Also, feel free to join our NET group. Just go the NET group home page and click on "Following" at the top of the page (in dark blue letters) and you will receive posts from all of our members and information about what is new with NETs. Teresa
@hopeful33250, Theresa thank you SO much for jumping in on this .. our group just didn't have a clue what this meant .. again .. many thanks! Katherine
Hi @gaylejean,
Actually, @windwalker did offer a response to your first question related to neuroendocrine tumors (NETs) and MAC. She said "No. MAC is an opportunistic mycobacterium that attacks people with weakened immune systems due to various disease situations."
However, Gayle, I'll use the words that @katemn often uses. Don't put the cart before the horse, especially since you don't have Pulmonary NETs. I couldn't find any literature in a Google search that suggests people with NETs are predisposed to getting MAC. Please don't add MAC to your worries unnecessarily.
If you are concerned, don't hesitate to talk to you cancer care team at Mayo. We have specialists at Mayo Clinic like Dr. Charles Thomas who specialize in lung infections as well as lung cancer, including the biology of neuroendocrine lung carcinoma, which includes pulmonary typical and atypical carcinoid tumors, large cell neuroendocrine, and small cell lung cancer.
Did your oncologist suggest that you monitor for MAC symptoms?
@gaylejean, we look forward to seeing you back in the "Carcinoid cancer" disucssion in the NETs group http://mayocl.in/2cK4PdN
Yep I did that. How do I get OFF the MAC subject?
@gaylejean, according to Colleen .. the way to do it is below .. best wishes to you .. Katherine
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Never received an answer I posed about MAC. Is this something ALL NET patients are predisposed to or only those with pulmonary NETs? Reading all this kind of freaks me out.