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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@bnthorson

Thx for your input. I have blood work and ekgs every month while on all these meds.
I’ll be interested to hear if the cream works. Does the Clofazimine affect your appetite and digestion? I have lost 5 lbs since I started taking it, on top of the 13 I lost when my MAC raised its ugly head again a year ago.

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Replies to "Thx for your input. I have blood work and ekgs every month while on all these..."
anniepie | @anniepie | Jun 1, 2021

Hi @bnthorson. The side effects are so variable with many of these drugs, it seems. The Clofazimine hasn't made a big difference to my digestion really, but it has affected my bowel a bit. The Azithromycin seems to have affected my digestion more, and it gives me more bloating / swollen belly.
The Clofazimine tooth staining is much more than I had with Rifampin. It only really happened after a year on the drug -- but it may not happen at all for you.
How long did you go before the MAC came back? (Oh this disease and the drugs we have to take! I wish I could fix it for all of us)

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