Connect
← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion
(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Thanks for your reply @bnthorson. Yes the Clofazimine suntan, laugh -- glad it is only that on my skin too.
I've been on Clofazimine for around 18 months now. The teeth stain has begun to be more noticeable in the past 6 months,
I think I will get a new mouth/teeth mold made so I can use special whitening crean from my dentist -- it's worth a try. I will let you know how it goes.
(PS. It's a good idea to get an ECG / EKG of your heart rhythms after taking Clofazimine for around 12 months, It gets rid of potassium and magnesium from the body and that affects some people's QT heart rhythm).
Good luck
Replies to "Thanks for your reply @bnthorson. Yes the Clofazimine suntan, laugh -- glad it is only that..."
Connect
Thx for your input. I have blood work and ekgs every month while on all these meds.
I’ll be interested to hear if the cream works. Does the Clofazimine affect your appetite and digestion? I have lost 5 lbs since I started taking it, on top of the 13 I lost when my MAC raised its ugly head again a year ago.