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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: May 2 12:23pm | Replies (261)
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@shariday

I’m new to the site. Is there a group for CIPD? Looking for people who have been wherever I’m going. So overwhelmed at this point.

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Replies to "I’m new to the site. Is there a group for CIPD? Looking for people who have..."
Lori, Volunteer Mentor | @loribmt | May 26, 2021

Hi @shariday and welcome to Mayo Clinic Connect. It sounds like you’ve just had the rug pulled out from under you and not knowing where to turn. I’m happy you found the Connect community. We’re here to help each other, to offer encouragement and hope...

It looks like most of the CIPD discussions are in the neuropathy group.

https://connect.mayoclinic.org/discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare/

I’d like to introduce you to @sandyhill @tjp4 @tab4025 @sdswoboda53 @harley22 @jazzy27

Here is also some information on Chronic Inflammatory Demyelinating Neuropathy from the National Organization of Rare Disorders which might help you understand the disease
https://rarediseases.org/rare-diseases/chronic-inflammatory-demyelinating-polyneuropathy/

Do you have a consultation with your physician regarding the diagnosis and possible treatments?

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Colleen Young, Connect Director | @colleenyoung | May 31, 2021

@shariday, I add my welcome. You'll notice that I moved your message to this existing discussion about CIDP (chronic inflammatory demylinating polyneuropathy). I did this so that you can connect with other members like @jtbt0406 @sherlock @harley22 @tjp4 @txamo

Shari, I understand that you're overwhelmed. Is this a new diagnosis for you? Have you started any treatment?

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