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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Aug 16 4:15pm | Replies (388)

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@timbeau

Xanna. Upon reading your post, I have experienced the same set of circumstances vis a’ vis the medical community. In many ways, medical “science” has given us a better quality of life as it relates to eyes, certain joints like shoulders, knees, hips, etc. However, with the neurology of spines, the medical community is found to be lacking.
This is made worse by the arrogance with which many pitch solutions that don’t work and (speaking from experience) many times cause harm.
Every day I wake up wishing I had never let anyone cut into my back.
I have no answers or suggestions to offer here, only a prayer and hope that you’ll someday find a solution to your pain and physical limitation.

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Replies to "Xanna. Upon reading your post, I have experienced the same set of circumstances vis a’ vis..."

I am so sorry to find out how many of us are suffering with no light at the end of the tunnel.
Being in touch it’s comforting. I am among those who suffered memory loss with Neurontin. Did not even want to try Lyrica
Please post any new treatment any new treatment anyone is aware off.
Good luck to everyone !
Please post if anyone has been diagnosed with concomitant neurological diseases. In my case, in addition ti arachnoiditis I also SUFFER from relentless trigéminal neuralgia and CRPS
The latter has been almost dormant for awhile
Thank you all for your comments and posts
I now know I am not alone