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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
Posted by @decosmo in MAC & Bronchiectasis, 4 hours ago
Hello All, I hope you had a good Saturday. I had to start a round of Doxcy today for 10 days for the most recent lung flareup. Some of you may know by my previous posts, that I also struggle with SIBO (small intestine bacterial overgrowth). Needless to say, I am a bit worried that this round of antibiotics will contribute to my SIBO and heaven forbid the dreaded C DIF. I have started to take 15 Billion probiotic daily (ultimate Flora) and wondering what strength those of you take when you are on a course of antibiotics.
Kate, I believe you shared info on Florstar. Does this probiotic contain dairy? I am lactose intolerant and I could not tell by the advertisement.
I look forward to learning about the strength and amounts you take.
Rosie
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@decosmo Rosie, I am moving this to the main Forum because I am afraid you won't get enough responses otherwise. I remember another member said they were lactose intolerant and mentioned a brand. I just looked at what I take: Renew Life Ultimate Flora Extra Care Probiotic 50 Billion .. says on the outside: Dairy Free. Hope others jump in with their thoughts since I am not lactose intolerant. Hugs! Katherine
Replies to "Posted by @decosmo in MAC & Bronchiectasis, 4 hours ago Hello All, I hope you had..."
@windwalker, Terri, I don't think it hurts a BIT to mention again "It doesn't get prescribed much because it is wickedly expensive and I
think it is a recent discovery that it works on MAC patients" .. since you know from personal experience that it is a recent discovery .. that means many doctors may not have made the connection yet with MAC patients. We DO need to be our own best advocates .. as we ALL well know! Hugs! Katherine
thanks @windwalker, good to know another antibiotic that works on these nasty bugs.There needs to be some sort of system between all MAC doctors, so they are all in the know.
<br><br><br><br><br>LOL, I repeat myself for the newcomers. I don't know when this drug came <br>out, but I wish I had known about before this year. It would have saved me a lot <br>of suffering.<br> <br><br>
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<br><br><br><br><br>I hate to keep reiterating this, but, ask about going on tobramycin. It is <br>inhaled and only goes to the lungs; sparing your stomach. That is what I am on <br>right now. It doesn't get prescribed much because it is wickedly expensive and I <br>think it is a recent discovery that it works on MAC patients. It has been used <br>mainly for those with cystic fibrosis to keep the opportunistic mycobacteriums <br>at bay.<br> <br><br>