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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "Posted by @decosmo in MAC & Bronchiectasis, 4 hours ago Hello All, I hope you had..."
@windwalker, Terri, I don't think it hurts a BIT to mention again "It doesn't get prescribed much because it is wickedly expensive and I
think it is a recent discovery that it works on MAC patients" .. since you know from personal experience that it is a recent discovery .. that means many doctors may not have made the connection yet with MAC patients. We DO need to be our own best advocates .. as we ALL well know! Hugs! Katherine
thanks @windwalker, good to know another antibiotic that works on these nasty bugs.There needs to be some sort of system between all MAC doctors, so they are all in the know.
<br><br><br><br><br>LOL, I repeat myself for the newcomers. I don't know when this drug came <br>out, but I wish I had known about before this year. It would have saved me a lot <br>of suffering.<br> <br><br>
<br><br><br><br><br>I hate to keep reiterating this, but, ask about going on tobramycin. It is <br>inhaled and only goes to the lungs; sparing your stomach. That is what I am on <br>right now. It doesn't get prescribed much because it is wickedly expensive and I <br>think it is a recent discovery that it works on MAC patients. It has been used <br>mainly for those with cystic fibrosis to keep the opportunistic mycobacteriums <br>at bay.<br> <br><br>