COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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@joeyd5641

Hi. I have a history of nueropathy that was dormant the last few years. the pfizer vaccine brought it back the next day. it went away after a week from the first shot, but like an idiot i went for the 2nd shot and it came back even worse,11 days out and its constant burning and itching.

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The CDC is very clear that if you have side affects from the first shot, you should not get the second. Just saying for other people. Are you okay now? I hope all is we..

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Where do I go and What do you look for to see if a vaccine is a flouroquinolone?

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@dhamil

Where do I go and What do you look for to see if a vaccine is a flouroquinolone?

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@mangamaker, @dhamil and all -
Flouroquinolone is an antibiotic, not an ingredient in vaccines. No Covid vaccine contains any antibiotic. As far as I know, there are no vaccines for illness that are composed of antibiotics.

Here is a description, directly from the CDC, about the 3 current vaccines and how they work: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/different-vaccines.html

Whether to have a second vaccine dose after a reaction from the first shot depends entirely on the type of reaction you experienced. The vast majority of reaction are an indication of your body's immune response to the vaccine, meaning your system is doing exactly what it should, building resistance to the virus.

Here is the CDC guidance https://www.cdc.gov/coronavirus/2019-ncov/vaccines/expect/after.html about what to expect. It stresses the importance of both doses to achieve protection.

A few are true allergic or life-threatening reactions, which should be carefully reviewed with you primary care provider or an infectious disease doc to determine whether to have a second dose.

Please remember that, as we learn more and more about Covid infections themselves, it is becoming obvious that this virus is NOT "just the flu" - in addition to higher-than influenza risks of severe illness, hospitalization and death, as many as 1/4 of the people who recover from the Covid virus have lingering aftereffects, ranging from annoying to severe. People with underlying conditions (like neuropathy or diabetes) are more likely to suffer severe illness and aftereffects.

I traded a couple months of discomfort (Okay, pain) from inflammatory flares for the chance to get my life back and to keep others safe.

When you are searching for information about the vaccine, the virus, etc it is very important to relay on first-line science and researched based data from the CDC, NIH, Mayo and other major research institutes - if you choose to use Google, please add them to your search, or look for them in your results.

Sue

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@sueinmn

@mangamaker, @dhamil and all -
Flouroquinolone is an antibiotic, not an ingredient in vaccines. No Covid vaccine contains any antibiotic. As far as I know, there are no vaccines for illness that are composed of antibiotics.

Here is a description, directly from the CDC, about the 3 current vaccines and how they work: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/different-vaccines.html

Whether to have a second vaccine dose after a reaction from the first shot depends entirely on the type of reaction you experienced. The vast majority of reaction are an indication of your body's immune response to the vaccine, meaning your system is doing exactly what it should, building resistance to the virus.

Here is the CDC guidance https://www.cdc.gov/coronavirus/2019-ncov/vaccines/expect/after.html about what to expect. It stresses the importance of both doses to achieve protection.

A few are true allergic or life-threatening reactions, which should be carefully reviewed with you primary care provider or an infectious disease doc to determine whether to have a second dose.

Please remember that, as we learn more and more about Covid infections themselves, it is becoming obvious that this virus is NOT "just the flu" - in addition to higher-than influenza risks of severe illness, hospitalization and death, as many as 1/4 of the people who recover from the Covid virus have lingering aftereffects, ranging from annoying to severe. People with underlying conditions (like neuropathy or diabetes) are more likely to suffer severe illness and aftereffects.

I traded a couple months of discomfort (Okay, pain) from inflammatory flares for the chance to get my life back and to keep others safe.

When you are searching for information about the vaccine, the virus, etc it is very important to relay on first-line science and researched based data from the CDC, NIH, Mayo and other major research institutes - if you choose to use Google, please add them to your search, or look for them in your results.

Sue

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hydroxychloroquine belongs to the quinolone family. Look at the vaccine ingredients where you can find them listed for the ones you can find them for.

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@barbbie

I have a list of allergies a mile long, many with anaphylaxis as a reaction, including the three you mentioned. I have small fiber neuropathy in both feet as well as Complex Regional Pain Syndrome there. I have used Lidoderm Pain patches on both feet, also lidocaine-prilocaine cream. My pain management doctor has done epidurals and I am scheduled for a Radio Frequency Ablation to the sural nerve. I have multiple spine issues from neck to tail bone, including having a spinal cord stimulator installed in 2012 and a new one in 2018. Together we decided I should not get the vaccine. I live alone, my husband died in January of 2020, my one daughter does my grocery shopping, the only places I go to are doctor offices so we thought the lack of exposure to virus was pretty slim. After reading what you all have gone through I am very grateful for that decision! My prayers for you who are suffering. May just the right help be on its way.

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thanks barbbie - i am not sure what to think anymore - was is right was it not? I am still working so I had little choice - but I hope that somewhere I will find a solution

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Ten days after receiving the J&J vaccine I developed neurological issues. my current diagnosis is Guillain Barre but many of my symptoms top not match up with most common GBS symptoms. I am currently in the process of finding a treatment protocol that works (tried IVIG for 5 days without lasting benefit) So far I am finding very little published data of others who have had similar experience to mine.

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@mangamaker

hydroxychloroquine belongs to the quinolone family. Look at the vaccine ingredients where you can find them listed for the ones you can find them for.

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I am very curious about what you may have read that states Covid vaccine contains quinolone. Can you please cite the article for us?
Sue

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@placitan

Ten days after receiving the J&J vaccine I developed neurological issues. my current diagnosis is Guillain Barre but many of my symptoms top not match up with most common GBS symptoms. I am currently in the process of finding a treatment protocol that works (tried IVIG for 5 days without lasting benefit) So far I am finding very little published data of others who have had similar experience to mine.

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Did you report the reaction to VAERS as an adverse reaction? What does your physician say about any possible connections?
Sue

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@sueinmn

Did you report the reaction to VAERS as an adverse reaction? What does your physician say about any possible connections?
Sue

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I did indeed and my physician has reported it to J&J. With no response to date. My GP and now my neurologist both think there could be a connection. Certainly there is a strong correlation. Hard to imply causation without more data

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