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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "I am new to this group....also new to the disease"
Dear All, Please jump in show @caroldelanelittleld what a wonderfully supportive community she has found .. you KNOW what a scary time it when you are first diagnosed .. it is an icky time! Love you all! Katherine
Hi @caroldelanelittleld and welcome to our group, please do not hesitate to ask anything, we have all been in your shoes. I hope you will find this group of lovely people a great help, we are all here for each other. 🙂
Welcome @caroldelanelittleld! We are absolutely here for you. The diagnosis of MAC is scary at first. Stay on top of it, take it seriously, and learn all that you can about it. My advise is: don't let it rule your life. Take care of what you can with it; then live your life.
Very well said! Accepting new limitations has been hardest for me, but as my mom once said, "It's all in the attitude, my dear!" That's easier said than done some days, but practice makes perfect! By not letting any disease define who you truly are helps you be the one in control! Irene
@irene5 .. Irene, you are one lucky woman to have had such a wise Mom! Love what she told you! I totally agree as you know .. MAC is just a piece of who we are .. it is NOT "who" we are! Hugs to all! Katherine
@windwalker I appreciate your advise 'don't let it rule your life'. This kind of boast helps a whole bunch on the pill procedure, and you take care too. Thanks!
@tessie, Tessie .. so true! Especially from a gal with 30% lung capacity! We have some real toughies in our community! Hugs to all! Katherine
<br><br><br><br><br>Thanks. Big Hug out to you Tessie!<br> <br><br>
@caroldelanelittleld,.. is your name Carol? or? I am REALLY glad you found us! Welcome! You may be new to MAC .. but trust me .. we have ALL been on this journey .. all of us at a different point .. but all on this shared journey .. we are here to help you .. support you in any way we can. We have "been there .. done that". Know how scary it is in the beginning .. BUT have come through that time .. KNOW there is a light at the end of the tunnel. Know what that light is? Knowledge! Knowledge is POWER! Knowledge is learning to advocate for yourself. Knowledge is TAKING BACK your power over your health care! How do you do that? By reading through the past pages of our Forum! 30 pages? Phooey .. you will read a 300 page book for pleasure .. you won't read 30 pages to educate yourself to our shared MAC disease?! Yes, of course you will! Then as you read .. feel free to come back with ALL your questions .. we are here for you EVERY step of the way. We know where you are right now .. how you feel .. how tough it is .. BUT we also know where you are going .. AND how you are going to get there!! BECAUSE we HAVE DONE IT!! We will walk this walk with you .. just keep coming back with your questions ,... concerns .. cares. We will be here. Sending you a hug in this tough time! Katherine