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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@anniepie

Sue @sueinmn very glad to hear this after you stopped the meds. It gives people like me a possible alternative for the future -- if I can't handle the side effects anymore.
I can't seem to get 7% saline in Australia but could import it from the US.
Just wondering -- do you know if there are any issues with inhaling higher dose/7% saline every day and taking high blood pressure meds?

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Replies to "Sue @sueinmn very glad to hear this after you stopped the meds. It gives people like..."
Sue, Volunteer Mentor | @sueinmn | May 25, 2021

Not that I am aware - it doesn't seem to have any effect on my BP (which is borderline.) Neither my primary nor my pulmo seem concerned about it either.
Sue

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anniepie | @anniepie | May 25, 2021

An open question to anyone who has been on Clofazimine meds for MAC/MAI: Did you ever get permanent grey/black/brown staining of your teeth?
What did you do about it?
(PS. It seems to permanently stain false teeth or crowns too, as well as real teeth).

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