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@katemn

Hello All .. @decosmo and @maryjo2sell An update on the Aerobika. As I mentioned .. I ordered a 2nd Aerobika from a medical supply company after being concerned that I had to place the dial at the maximum level to create enough resistance/ "huff coughing" to be effective. Well I received the 2nd Aerobika .. cleaned it carefully as I had the one from Ebay. Then I traded off from one to the other in "huff coughing" to see what difference I could find. If I am 100% honest I just couldn't find much difference .. at MOST the difference might be in favor of the medical supply Aerobika of perhaps 5 to 10% greater resistance. If I were to GUESS .. the medical supply one came with a bit more fancy hand outs .. but the EBAY came with the proper full Aerobika Instructions for Use .. so MAYBE Ebay gets "Returns" that are just fine but Medical Supply companies can't resell???? So frankly if money is a BIG issue for someone .. if you Private Message me .. I will share with you the Ebay vendor I purchased mine from. BUT if not .. I would purchase your Aerobika from a medical supply just to be safe! (also .. I am HOPING that the fact I must put the dial at the Maximum means my lungs are pretty darn decent??)
Hugs! Katherine

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Replies to "Hello All .. @decosmo and @maryjo2sell An update on the Aerobika. As I mentioned .. I..."

Thank you for Katherine. Dr. Leventhal approved my using the Aerobika so I will purchase and cross my fingers it will prove useful. Rosie

@decosmo, Rosie, I will be shocked out of my mind if the Aerobika doesn't help you!

Which is the best Airway Clearance method for Cystic Fibrosis? https://www.youtube.com/watch?v=Wn5o5AgD9m0

In it he talks about all the various devices that are helpful .. how to use them .. AND his favorite. After watching this video I now know I am wasting my time doing what I always thought was my "lung hygiene" FIRST .. THEN going to my Aerobika to get up MORE sputum! What a waste of time and energy! I need to go right from my 2 inhalers DIRECTLY to the Aerobika for the most effective "lung hygiene"! Man, we learn something new every day! Plus I learned .. since I am using the Aerobika at the max setting .. it might be smart for me to also have the RC Coronet which is a bit more demanding. I think I am going to order it today. I could switch off between the Aerobika or the Cornet depending on how much pressure I feel I need that day! Check out the video .. interesting info! Hugs! Katherine

Thank you Katherine. Watched the video informative and educational. Dr. Leventhal also suggested either the acapella or the aerobika. I was reading the contraindications and saw sinitus on the list. Hmmm, wonder if it will cause me issues. Another question for Dr. Leventhal. I am sure he is getting frustrated by now of my asking his staff to answer questions. LOL

@decosmo, Rosie, I would definitely do the Aerobika .. at least for me the Acapella did zero! Just my opinion. The Acapella has the dial feature so you have so many more options. Hugs! Katherine

@decosmo Rosie, I don't know if it would help you .. but below is my particular routine .. partly based on help from @lindam272 .. Linda .. change it around to fit yourself .. hope it helps a bit! Hugs! Katherine
INHALERS/LUNG HYGIENE
Below is my particular routine in using my Aerobika
1. use my 2 inhalers PRIOR to brushing my teeth
2. use a "huff" cough at least 3 times .. like you were cleaning your glasses and fog them with your breath .. only MORE forcefully. Then use the Aerobika device per the instructions. Do the huff cough along with the Aerobika until you feel you have gotten up as much sputum as you possibly can. I have found using the Aerobika you are able to " pull" mucous out of those lower lung airways in a way you cannot without the device. Personally I do this twice a day.
3. using peroxide to dampen my toothbrush and toothpaste to brush (purchased a squirt dispenser for the peroxide)
4. rinse my toothbrush .. then using peroxide for toothbrush storage for sterilizing
I think this routine will help oral thrush by keeping my Sonicare toothbrush sanitized daily. http://www.good-gums.com/sanitizing-your-toothbrush.cfm
5. Use my Expand-A-Lung Breathing Fitness Exerciser http://www.expand-a-lung.com

Thank you, Thank you Katherine. I am so glad I found this site and you! Did not know about the expand a lung breathing fitness exerciser. Another apparatus to buy. I am all for increasing lung health through minimal medication when possible.

Thanks Kate, Hearing your routine was really helpful!!!!!
David

Hi there — I missed the connection on the postings. Will you please tell me what the lung exerciser is? Thanks, Anne

@jamesthee, Hi Anne, It is Expand-A-Lung Breathing Fitness Exerciser http://www.expand-a-lung.com. I got mine at: https://smile.amazon.com/Expand-A-Lung-Breathing-Fitness-Exerciser/dp/B00JWTRA5I/ref=sr_1_1_a_it?s=digital-text&ie=UTF8&qid=1488654899&sr=8-1&keywords=Expand-A-Lung

Everyone who has used it has really liked it! Hugs! Katherine

Thank you, Katherine. I saw it and will discuss with pulmonologist.