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Ongoing pain with normal CRP and ESR - PMR?
Polymyalgia Rheumatica (PMR) | Last Active: May 27, 2021 | Replies (12)Comment receiving replies
Thank you for your response. Before I found this format, I was at a loss to connect with others that had this disease. I was diagnosed the end of September, 2020. I started prednisone soon after my diagnosis. With the onset of PMR in September within 48 hours I was unable to go up stairs, open doors, it was quite an awakening of how much pain one can tolerate. I'm grateful for prednisone. However, the thought of a reoccurrence is terrifying. Is it true that one has a reoccurrence within six years on average? Again, thank you, I will read the articles.
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@sue16833 - Reoccurrence is common but each of us are different and no one really knows. I have a good friend about my age that was diagnosed about the same time as myself in 2006-2007 and he was able to get off of prednisone within a year and has not had another occurrence of PMR. I took 3-1/2 years to taper off the first time and it came back for me 6 years later in mid 2016. I was able to taper off in about 1-1/2 years the second time but I had made some lifestyle changes and was eating healthier and exercising more which I think helped me a lot.
Good luck on tapering and remember it's better to taper slowly.