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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6026)

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@ljarman

Good morning, I am new to this group and found it supportive just to open some of the posts here and see myself. This has been such a life changing experience that I knew I needed to find other people who were experiencing the same thing. I am not a patient of the Mayo Clinic and am hoping that does not matter for participation in the support group. I have Sensorimotor Peripheral Neuropathy. It is active in my arms, hands, legs and feet, bladder and I suspect digestive system. Although I have been diabetic insulin dependent for many years, I also have multiple auto immune diseases. I started falling in early December of 2020, dizziness, hands falling asleep when I would hold my cell phone, urinary incontinence and just recently bowel incontinence. I now use a walker and a wheel chair and have gone on short term disability. This came on suddenly and has progressed since it presented itself. Glad to be part of the group. LJarman

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Replies to "Good morning, I am new to this group and found it supportive just to open some..."

Hello @ljarman, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Connect is open to all who seek support and want to connect with others who share similar symptoms. I'm glad that you found Connect. It's a great place to learn what others have shared and hopefully find something that helps with your symptoms. There are many different discussions in the Neuropathy group and if you don't see what you are looking for it's easy to start another discussion.

Here are a few discussions you may want to check out and see what others have shared...
-- Generalized Sensorimotor Peripheral Neuropathy over my entire body: https://connect.mayoclinic.org/discussion/back-again-its-been-a-while/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Can you share which of your symptoms bothers you the most?