← Return to Ongoing pain with normal CRP and ESR - PMR?

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@johnbishop

Hello @sue16833, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. You will notice that we changed the title of your discussion a little to better describe your question and hopefully bring more members into your discussion to share their experience.

I have had two occurrences of PMR and lived with a little pain while tapering off of prednisone. I kept a daily log of my prednisone dosage and a pain scale of how I was feeling when I got up in the morning. When it was time to taper to the next lower dose I would do it if my pain level was a 1 or 2 on a scale of 1 to 10. I still have normal aches and pains like yours and have my CRP and ESR levels checked annually and they are usually in the normal range. Here are a couple of articles that provide a little more information on the tests and meaning.

-- Erythrocyte Sedimentation Rate and C-Reactive Protein: Old But Useful Biomarkers for Pain Treatment: https://www.practicalpainmanagement.com/treatments/erythrocyte-sedimentation-rate-c-reactive-protein-old-useful-biomarkers-pain-treatment
-- Polymyalgia rheumatica with normal values of both erythrocyte sedimentation rate and C-reactive protein concentration at the time of diagnosis: a four-point guidance: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5911650/

How long has it been since you were diagnosed with PMR and started on prednisone?

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Replies to "Hello @sue16833, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Thank you for your response. Before I found this format, I was at a loss to connect with others that had this disease. I was diagnosed the end of September, 2020. I started prednisone soon after my diagnosis. With the onset of PMR in September within 48 hours I was unable to go up stairs, open doors, it was quite an awakening of how much pain one can tolerate. I'm grateful for prednisone. However, the thought of a reoccurrence is terrifying. Is it true that one has a reoccurrence within six years on average? Again, thank you, I will read the articles.