← Return to At a loss, multiple consultations still no answer...any idea?

Discussion
Comment receiving replies
@athenalee

Please try to remain positive! I know how frustrating it is not getting answers and waiting endlessly to get seen by a specialist. I’ve found it helpful to keep writing all my doctors, primary and specialists, through the hospital portals. Continuing to remind them your symptoms are getting worse, you need answers, what are the next steps, etc.

If you can, I also sent my symptoms and lab results off to research labs that dealt with autoimmune diseases and asked them what they thought, since I wasn’t getting the attention I needed. I did get a response. I think you said your labs didn’t reveal anything, but with your symptoms you still may be able to research possible diagnosis. I know “Google doctor” doesn’t offer solutions, but it has helped me to research what may be going on.

My best wishes for you to find the help you deserve soon!

Jump to this post


Replies to "Please try to remain positive! I know how frustrating it is not getting answers and waiting..."

Good points, thank you. I've just emailed mayo clinic to get an idea of what the cost may be. It's looking like that will be my next port of call as long as it isn't too expensive. I'll see what I can do with the lab work, there's a decent facility not too far from me that offers more specialised tests.