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@kenyalama

Hello,
I am so sorry to.disappoint anyone with arachnoiditis. I’ve been suffering from it for twenty years. Diagnosis was confirmed by the May Clinic. It does not have cure or specific treatment and it is progressive. I am now using cane, wheelchair or electric scooter depending on the distance. It causes pelvic floor pain, severe stiffness in the. Back of my legs, partial numbness and the last few months sciatic pain on both sides. I tried pain pump many years ago. It was removed because it was not helping, PT seems to aggravate it. I now have a pain pump but for relentless trigeminal neuralgia. It is helping the TN but not the arachnoiditis. I was als diagnosed with CRPS and Rheumatoid arthritis
Anyone with so many neurological conditions?
I have and I am in very best hands : Mayo Clinic and now Baylor college of Medicine. I love and respect my doctors but this is a very difficult condition to treat. It’s almost hit or miss even for the very best .
Hang in there ! I am always hoping science will help l

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Replies to "Hello, I am so sorry to.disappoint anyone with arachnoiditis. I’ve been suffering from it for twenty..."

Thank you so much for your answer. I have been told what the outcome might be but hearing it from you really frightens me but I guess have no choice. The only thing I ask of you is you ever get any treatment that helps even a little bit please let people like me could at least try, God bless you. You are in my prayers kenyalama.