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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Thank you for your kind words as always Elizabeth.
The problem is that at this current moment they have no idea what the problem is so they can't prescribe me anything.
I have no idea. All I know is that my Dr sent off my current medical files along with a number of photos of my face from before to now. It's a fairly large facility, but it isn't a teaching hospital.
It's bizarre, I've had no facial pain but the atrophy has continued. That's why I removed all mirrors as it was getting too much. It's just a waiting game now, thankfully covid isn't what it. However, the backlog is fairly substantial so who knows when I'll be seen.
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Please try to remain positive! I know how frustrating it is not getting answers and waiting endlessly to get seen by a specialist. I’ve found it helpful to keep writing all my doctors, primary and specialists, through the hospital portals. Continuing to remind them your symptoms are getting worse, you need answers, what are the next steps, etc.
If you can, I also sent my symptoms and lab results off to research labs that dealt with autoimmune diseases and asked them what they thought, since I wasn’t getting the attention I needed. I did get a response. I think you said your labs didn’t reveal anything, but with your symptoms you still may be able to research possible diagnosis. I know “Google doctor” doesn’t offer solutions, but it has helped me to research what may be going on.
My best wishes for you to find the help you deserve soon!